Persons With Disabilities

So you’re thinking of going into a nursing home? Here’s what you’ll have to pay for

This week at the aged care royal commission hearings, the CEOs of three aged care providers called for a change in the way residential aged care is funded to improve the quality of care. Laura Davy The Conversation This followed a plea from Aged Care Services Australia for the government and opposition to address what it called a “crisis in residential aged care funding”. But while most residential aged care funding comes from government, residents also have to contribute. So ... Read More »

This is what neglect looks like

Within days of Eva Rinaldi taking her father to a nursing home in November last year, she knew something was wrong. By Anne Connolly and Clare Blumer, ABC Investigations Despite his dementia, diabetes and blindness, 80-year-old Luigi Cantali kept telling her he wasn’t showered, his continence pads were not changed, and he was left inside all day with no exercise. Eva complained to management at Carino Care, the nursing home in the Sydney inner-west suburb of Russell Lea, but her ... Read More »

The Secrets Hidden Beneath the Palm Tree: A picture book about deafness

I’ll start with a disclaimer: I love Angeliki Pedersen, author of The Secrets Hidden Beneath the Palm Tree. We attend the same parish, and I think I must have met her the first time we visited here. She’s the kind of person that reaches out to strangers at coffee hour and makes them feel welcome. © Charlotte Riggle As Angeliki and I got to know each other, we learned that we’re more than just members of the same parish. We’re also ... Read More »

Blind Victorians illegally denied service because of guide dogs

Chris Gould has been accosted by staff at his local supermarket at least five times because of his guide dog Simba. Rachel Eddie The Age Instead of walking the block from his Malvern East home to that store, the Melbourne man who is legally blind once walked 1.5 kilometres to buy groceries in peace. Mr Gould, 30, was born with a degenerative genetic disorder called retinitis pigmentosa, which ultimately led to his diagnosis as legally blind in 2017 – though ... Read More »

Rights of prisoners with intellectual disabilities must be respected

Study exposes shortcomings in treatment of prisoners with IDs, treatment they are entitled to George Winter The Irish Times In 2006, the United Nations Convention on the Rights of Persons with Disabilities (CRPD) was adopted, promoting autonomy, choice, independence, equality and participation. The CRPD includes provision for those with intellectual disability (ID). This is typically diagnosed if individuals have an IQ below 70; an impaired ability to effectively interact with society on all levels and care for themselves; and have had developmental ... Read More »

Australia’s 2018 Human Rights Performance Slammed

The Australian government’s human rights approach to refugees, Indigenous people and those with disability has been slammed by an annual review, which warns that Australia is at risk of … Luke Michael ProBono Australian Lawyers for Human Rights’ (ALHR) 2018 Human Rights Report Card scored Australia poorly on key areas including Indigenous rights (F-), refugees and people seeking asylum (F) and… While the federal government was praised for introducing a Modern Slavery Act, the review noted Australia faced persistent criticism by multiple United ... Read More »

NDIS funds to be ‘repurposed’ for drought relief under Morrison plan

Disability advocates have slammed Prime Minister Scott Morrison’s decision to “repurpose” $3.9 billion originally set aside for the NDIS to pay for drought relief, but the plan has been cautiously welcomed by… Dana McCauley The Sydney Morning Herald Mr Morrison unveiled his $5 billion Drought Future Fund at a summit attended by farmers, economists, industry bodies and state and federal ministers in Canberra on Friday, promising measures to drought-proof the… The first $3.9 billion of the scheme, which would operate ... Read More »

We can all help to improve communication for people with disabilities

Around 5% of the population, or 1.2 million Australians have a communication disability. Communication disability can arise if a person has a health condition affecting their speech, language, listening, understanding, reading, writing, or… Authors: The Conversation Communication disability can be lifelong (as for people with cerebral palsy or intellectual disability) or acquired (as for people with stroke and aphasia, motor neurone disease, or… All people need to be able to communicate in order to work, build relationships, and seek the ... Read More »

Before he was murdered, here is what a disabled asylum seeker had to say about Britain’s ‘hostile environment’

Kamil Ahmad, a disabled man, fled his home in Iraqi Kurdistan after being tortured and imprisoned. Rebecca Yeo The Conversation He arrived in Bristol, England, in 2012 hoping to find peace and safety, but his application for asylum was refused. On July 7, 2016, Kamil was murdered. This was almost exactly three years after the murder of another disabled refugee from Iran, Bijan Ebrahimi, also in Bristol. Official enquiries have taken place into the two murders, which were both found ... Read More »

Theatre connects migrant communities with government NDIS services

An amateur theatre production about disability services might not be the typical feature on a playbill but Everlyn Tsavalas thinks the stage is the perfect way to engage the Greek community on the topic. Luke Wong ABC “For us, theatre is a school,” Ms Tsavalas said. “In any of our productions we always want people to leave here enriched in some way or another, whether it’s a comedy or a tragedy. “It was quite challenging making such a serious subject ... Read More »

Antipsychotics used to manage autism and intellectual disability behaviour can have serious side effects – new study

Antipsychotic medication is typically licensed in the UK for people with serious mental health conditions, such as schizophrenia. Sinead Brophy The Conversation But in recent years, some antipsychotic drugs have been prescribed more and more “off label”. That is, for a condition for which they do not have approval from the medicines regulatory agency to treat. Off label prescribing can be done under certain circumstances, such as when the prescriber believes it is in a patient’s best interests. For example, ... Read More »

Why the daunting economics of elder care are about to get much worse

My sister Carol loves movies, but she hasn’t been out to see one in years. When she tries to watch one at home, she’s frequently interrupted. Patricia Smith The Conversation She shrugs this off, saying “Who needs to see movies when you’re living one?” You see, my sister is living the plot from the movie “Groundhog Day.” She takes care of our mother, who suffers from dementia. Our mom asks the same questions over and over and only wants to ... Read More »

Cornered in the shower and assaulted: the torment of a prisoner with disabilities

I was interviewing prisoners in a male prison in Western Australia, on a sweltering afternoon, when Coen (not his real name) walked in, in his faded green prison uniform. Kriti Sharma The Sydney Morning Herald  For the first five minutes all he could say was, “It’s too shameful. I can’t tell you.” Coen, an Aboriginal man in his early 20s with a cognitive disability, had only been in prison for a few months but he looked defeated. With tears rolling ... Read More »

In My Chronic Illness, I Found a Deeper Meaning

I became disabled overnight in a car accident. The car accident was a dream, but the disability was real. Elliot Kukla The New York Times I dreamed I was driving through the ravaged streets of Oakland, Calif., at the end of the world. I turned the corner and careened inescapably into a white chemical blaze. I woke with a start, the white flash still burning behind my eyes, the worst headache of my life piercing my left temporal lobe. I ... Read More »

Michael Lee has motor neurone disease. This is what he thinks of euthanasia

Michael Lee was diagnosed with motor neurone disease (MND) 10 years ago, when he was 35 years old. Tracy Bowden Three years later he met his wife, Joanna, and they married in 2012. ABC Joanna is his primary carer, helped by a team of care workers. She is determined that her husband will not choose to end his life because he thinks he has become too much of a burden. Over the years the disease has taken its toll, causing ... Read More »

Man with intellectual disability jailed because NDIS couldn’t provide carer, released on bail

Judge says he’s ‘horrified’ by isolation conditions 20-year-old Victorian man, Francis, was held in after service provider pulled out of care contract Calla Wahlquist  The Guardian A Victorian man with a profound intellectual disability will be released from jail on Monday after spending two months in isolation because he did not have an accredited care provider. Announcing his decision to release 20-year-old Francis on bail on Thursday, supreme court judge Lex Lasry reportedly said he was “horrified” by the conditions ... Read More »